19 year old Ella has come to Saint
19 岁的 Ella 因
George's with pain in her knee
膝盖疼痛来到圣乔治医院，
hi Ella my name's Alison I'm one of the
嗨 Ella，我叫 Alison，我是一名
nurse practitioners nice to meet you
执业护士，很高兴认识你，我
nice to meet you as well right tell me
也很高兴认识你，告诉我
what's brought you here today so I woke
你今天来这里的原因，我
up yesterday morning with pain on the
昨天醒来 早上
medial side of my left knee my left knee
我的左膝盖内侧疼痛，我的左膝盖经常
is notorious for dislocating yeah and I
脱臼，是的，我
there was a very loud audible pop and
听到一声很大的砰砰声，
then um in the middle of the night last
然后昨晚
night I just was woken up by the pain
半夜我被疼痛惊醒了，我的左
and it's swollen up okay so yeah we've
膝盖肿了 好的，所以是的，我们的
got very long legs exactly
腿很长，
from somebody who's got very short legs
而我们的腿很短，
all right and do you work I'm a medical
好的，你在工作吗，我是一名医
student here lovely
学生，
right let's have a look at your knee yes
可爱，让我们看看你的膝盖，是的，
my parents would always tell you that as
我的父母总是告诉你
a kid I was just a world-class mess
小时候，我只是一个世界级的混乱
maker I can limp gently roughly
制造者，我可以轻轻地跛行，
I was very active running around
我非常活跃，到处乱跑，
just into everything sit down quickly
随便坐下，
sorry that's all right
对不起，没关系，
I don't think there was a day in the
我想一周中没有一天
week where I didn't have some kind of
我没有 我正在进行某种
sports practice
体育锻炼
I'm nearing six foot now
现在接近六英尺了，
really quite tall for a girl
对于一个女孩来说已经很高了
[Music]
[音乐]
like he was swimming because I was a lot
就像他在游泳，因为我
taller than everyone else I was really
比其他人都高很多，我真的
good at it okay pull your joggers up
很擅长游泳，好吧，拉起你的慢跑裤，
let's have a look at your lovely knee
让我们看看你可爱的膝盖，
I remember I would get on the diving
我记得我会得到 在跳水
blocks and I could just feel my heart
台上，我能感觉到我的心跳，当
going
and you get in the water and you'd have
你进入水中时，你会有
a couple of seconds of limbo
几秒钟的恍惚，
and then all of a sudden your hair comes
然后突然间你的头发
out the water and you hear the screaming
浮出水面，你会听到尖叫声
and the cheering when you're competing
和欢呼声 你正在比赛，
all you can think about is getting to
你所能想到的就是
that wall at the end and it's exhausting
最后到达那堵墙，这很累，
but amazing and if I can look at the
但也很神奇，如果我能看看
other one as well yeah
另一堵墙，是的，
I felt like this is what I'm gonna do
我觉得这就是
with my life I'm good at it I like the
我一生要做的事情。 我很擅长，我喜欢
teamwork I've good friends we will have
团队合作，我有好朋友，我们会有
the same drive to keep winning keep
同样的动力去赢得胜利，继续
going swimming
游泳，
I just found a love of moving
我刚刚发现了对运动的热爱
and I was enjoying my body but I started
，我很享受我的身体，但我开始
to notice things were wrong
注意到事情不对劲，
okay so I think it'd be a good idea just
所以我认为 最好只是
to extra it and then we've got a record
把它加进去，然后我们也会得到一份记录，
as well of what it looked like
看看它是什么样子的，
um do you want to jump back in the chair
嗯，你觉得呢 想再次跳回椅子上，
again
metaphorically thank you thank you so
比喻地谢谢你，非常感谢，
much no worries
不用担心，
I was constantly falling over tripping
我经常摔倒，绊倒
over myself twisting ankles and I just
自己，扭伤脚踝，我总是
always thought I was clumsy
以为自己很笨拙，
there we go I'll just pop you there
我们走了，我就把你放在那里，
but
但
suddenly my world did get turned upside
突然我的世界 颠倒过来
down
everything changed
一切都变了
Ella has been sent for an x-ray after
埃拉来后膝盖疼痛被送去做X光检查
she arrived with pain in her knee how
are we on anyway
我们怎么样了
um it's a bit temperamental okay
嗯它有点喜怒无常好的
yeah you transfer over to him yes
是的你转到他那里是
it is
的
I was waking up to Junior Team GB level
我醒来时看到了少年队 英国级别的
swimming and I was really getting places
游泳比赛，我的确取得了一些成绩，
with it
that's absolutely fine yeah
这完全没问题，是的，
I was competing internationally but I
我参加了国际比赛，但
had pain day to day in my joints
我的关节每天都很疼，
then an August evening I was just
然后一个八月的晚上，我
walking around my garden at home
在家里的花园里散步
and out of nowhere just collapsed yes
，突然就晕倒了，是的，
head listen
头 听着，
I couldn't put any weight down my left
我的左腿无法承受任何重量
leg and the pain was going all the way
，疼痛
down from my hip down to my knee
从臀部一直延伸到膝盖，
it was the most painful thing I have
这是
ever experienced in my life away
我一生中经历过的最痛苦的事情，
I had to crawl inside and call for help
我不得不爬进去，呼救
from my mum and she said we've got to go
我妈妈帮忙，她说我们必须去
Tony
托尼
I remember the consultant she said has
我记得 顾问她说有没有
anyone ever spoken to you about Marfan
人跟你谈过马凡
syndrome
氏综合征
the implications weren't apparent to me
我完全不明白其中的含义
whatsoever
slightly like that
有点像那
person's still there for me
个人仍然在我身边
more fun syndrome is a connective tissue
更有趣的是综合征是一种结缔组织
disorder
疾病
it causes all the kind of elastic
它会导致
structures in your body to be defective
你体内的所有弹性结构 有缺陷的
can also cause people to grow to
也会导致人们长到
ridiculous sizes and lengths
荒谬的尺寸和长度
you get early onset arthritis joint
你会早发性关节炎关节
dislocations constant pain
脱位持续疼痛
I was now
我现在
no longer able to compete
不能再参加
swimming riding Athletics track I can do
游泳、骑马、田径比赛了，我可以做
any of it
任何事情，
right out yeah
是的
[音乐 ]
just on the cusp of adulthood and
即将成年，
getting out in the world and doing all
走出去，做所有
the things I wanted to do
我想做的事情，
but my body failed me
但我的身体让我失望了，这种
the feeling is just like having the
感觉就像
ground ripped away from under your feet
脚下的地面被撕裂了
and you suddenly start fearing
，你突然开始害怕
everything that happens to you
发生在你身上的一切 你
awesome
太棒了，
thank you very much
非常感谢你，
every little headache every little
每一个小小的头痛，每一个小小的
niggle and pain you think something
烦恼和疼痛，你认为
going wrong here
这里出了什么问题，
it can make for quite anxious living
这可能会让生活变得相当焦虑，
cheers thank you take care and you
干杯，谢谢你，保重，你是对的，亲爱的，
right darling okay
好的，
I spoke to the reporting radiographer
我和报道放射技师谈过了，
there is something on your femur okay
你的股骨上有东西，好的
it's all right sorry don't worry yeah
没关系 抱歉不要 担心是的，
there's something on your femur
你的股骨上有东西，
um that just looks a bit abnormal so I
嗯，看起来有点不正常，所以我
asked the orthopedic surgeon he's going
问了骨科医生，他会
to come down and have a chat with you
过来和你聊聊，
okay I'm only gonna have a panic attack
好吗，我很快就会惊慌失措，
really shortly no you're not you look at
不，你不会，你看起来 看着
me look at me you're gonna be absolutely
我，看着我，你会
fine all right
没事的，好的，
okay yeah okay all right well I believe
好的，好的，我相信
in being honest with people yeah no no
对人要诚实，是的，不，不，
no I mean just um
不，我的意思是，嗯，
sorry I'm really sorry I just don't be
对不起，我真的很抱歉，我只是不要
silly I'm really scared I love this one
傻了，我 我真的很害怕我喜欢这个
you're gonna be fine
你会没事的
medical student Ella is waiting to be
医学生Ella正在等待
seen by orthopedic doctors after x-rays
骨科医生的检查，因为X光
have shown an abnormality on her femur
显示她的股骨有异常，
okay I've just got to do it I know
好吧我必须这么做我知道
they've just got to do it and she's been
他们刚刚 必须这样做，她一直
straight with me yeah
对我直言不讳，是的，
the friend has arrived at St George's
朋友已经到了圣乔治医院，
so you can see that it goes no further
所以你可以看到事情没有进一步发展，
it's all right bring her in here to
没关系，把她带到这里
examine her yeah
检查一下，是的，
hello yep that's me
你好，是的，那就是我，
the fact that there's two of you is
事实上你们两个
making me terrified my anxiety has
让我害怕我的焦虑已经
peaked just go in bed just have a look
达到顶峰了 在床上看看
at your knee is that okay
你的膝盖，这样可以吗？
after my diagnosis
诊断后，
I was upset I was frustrated why had
我很沮丧，很沮丧，为什么
this happened to me why was I pulled
这种事会发生在我身上，为什么我要
away from what I thought my future
放弃我以为的未来
career was going to be in sports John
运动生涯，约翰，
it's my other knee out as well for
这是 我的另一只膝盖也伸出来了，为了
comparison perfect thanks
比较，非常感谢，
I was no longer spending time with my
我不再花时间和我的
teammates and my friends going to
队友和朋友一起
training and practice I was no longer
训练和练习，我不再是
part of this swim team
这个游泳队的一员，
things were different I started seeing
事情变得不一样了，我开始以
the world differently
不同的方式看待世界，
is that what are you or not particularly
你是什么 或者不是特别
what that yeah no not that's fine that's
什么，是的，不是，没关系，这
normal
很正常，
then I realized that despite the fact
然后我意识到，尽管
that I may have male fans the world is
我可能有男性粉丝，但世界
still my oyster
仍然是我的牡蛎，
all right and then this side that's
好吧，然后这边
absolutely fine so there's no swelling
完全没问题，所以
around any there's nothing like that
周围没有任何肿胀，没有那样的事情
that whole experience I had with my
我与
diagnosis
talking to the Consultants talking to
顾问和
the nurses was really enlightening for
护士交谈的整个诊断过程对我来说真的很有启发
me
and I suddenly realized maybe this is
，我突然意识到也许这是
something I want to do
我想做的事情
and that's why I went into medicine fine
，这就是为什么我进入医学界
and the pain is only about two or three
，疼痛只有大约两到三天
days he said is that right literally
他说的天数是真的吗
yesterday perfect okay that's fine
昨天完美好吧那很好
probably down
可能
I'll get to it just because I don't want
我会去 只是因为我不想让
you to be stewing about it too much
你太担心，
so whenever we find something like that
所以每当我们发现类似的事情时，
often we do just further investigate
我们都会进一步调查，
them to me it doesn't have very many
对我来说，它没有太多
concerning features so I think um you
令人担忧的特征，所以我认为你
shouldn't be too worried about it too
不应该 太担心了，
thank you so much
非常感谢，
I'm sure I'll see seeing you around at
我肯定会在乔治家见到你，非常
George's thank you so much
感谢，
how are you feeling
你感觉怎么样，
we should yeah
我们应该是的，
medical students we make the worst
医学生，我们是最糟糕的
patients
病人，
I've always wondered whether being
我一直想知道
chronically ill would negatively impact
慢性病是否会 对
me and my career in the future as a
我和我未来作为一名医生的职业生涯产生负面影响，
doctor but actually I think it's quite
但实际上我认为这非常
useful
有用，
right I'm gonna try and walk out of here
对吧，我会试着离开这里，
actually I think I'll walk on crutches
实际上我想我会拄着拐杖走路，
I understand what it's like to sit in
我明白坐在那把椅子上是什么感觉，
that chair and to have a doctor tell you
让医生告诉你
bad news
坏消息，
I understand just day to day how
我每天都能理解
long-term conditions can impact you in
长期疾病会如何影响你
your life when I you know hopefully
的生活，我希望有
qualify one day I'd love to have the
一天我能康复，我希望有和
same kind of empathy and honesty as you
你一样的同情心和诚实
you know so right
太好了，
No More Tears thank you so much all
不再流泪了，非常感谢，
right you take care thank you it all
好吧，你保重，谢谢你，一切都会
turns out I am sure it will
好起来的，我相信它会
back in the past when I was young and
回来的 过去，当我还年轻而
naive success would mean winning
天真的时候，成功意味着赢得
success today means making connections
胜利，而今天的成功意味着
with other people and understanding them
与其他人建立联系，并理解他们，
all right
foreign
s about what will end up happening in
对未来会发生什么，
the future but I really want to be a
我非常想成为一名
female consultant because right now we
女性顾问，因为现在我们
are lacking those that would be the
缺少那些
dream that would be the hope
梦想和希望